So apparently I have this jinx thing going on. If I say I feel great, then within a few hours I feel awful. Then if I say I feel awful, then within a few hours I feel great. So I guess I must complain about feeling awful all the time to feel good? About an hour after I wrote the queasy blog I took a nap and woke up feeling fine and have been feeling fine every since (oh no, what I really mean is I feel AWFUL- is that good enough to work for the jinx?).
Friday I had an appt. with my gyn onc, not my favorite doctor of the bunch. It was my regularly scheduled 6 month checkup and while I had been there a month before when I was being diagnosed with this recurrence and he had done a pelvic exam he told me to keep the appt. So it's the same time as my radiation, but the rad techs tell me it's okay, just come to them afterwards. I go to the gyn onc appt. and when I get into the exam room the nurse is completely confused as to why I am there since the drs. notations say that he will see me after radiation is finished (which is nice since he never said anything to me about that). She asks me no less than 6 times when I started radiation (to which 6 times I answered the same answer, this past Monday). Then she says, well get changed just in case. I say, I'm wearing compression stockings can you please check to make sure I need to get changed since they are hard to get on and off. She checks and says yes, he wants you to change. I figure maybe he'll give me a pap, since he just did a pelvic a few weeks ago.
The dr. comes in and does a pelvic, no pap. He's got a med student or some such with him which actually makes him just the slightest bit more personable than his usual asocial manner. We talk about radiation and my appt. at Fox Chase the next week and he says come back to see him in 3 months. I get dressed and as I am leaving I pick up my paper thing to bring to the front desk and underneath is another paper. It's an amended pathology report dated 1/25/07 from my original surgery in 2004. I bring it out and ask about it, the dr. doesn't know about it and the nurse says, oh, I was supposed to show that to you. He glances at it and says it's just a typo correction, something about left and right side nodes, no big deal. I say I want a copy of it so I have a correct copy to bring to Fox Chase. He says, we sent them all the records. I say no, I sent them all the records and want this one. He says in his best patronizing "I think that you are being silly but I will pacify you" kind of voice, that I can have a copy. They give me a copy and I go to the front desk to check out. I find out that they don't have the calendar for 3 months and to call them in a couple weeks. As I leave I read the amended pathology report. The "typo" is not about which side the positive lymph node was. The typo is the fact that there were TWO positive pelvic lymph nodes on the left side, not ONE like the original pathology report stated.
I find this very disconcerting, and while no, it doesn't change anything, the treatment would have been the same, it's just one more sloppy thing. Also I am not thrilled with my drs. attitude about it all (or about his attitude about the fact that the HER2nu testing and hormonal testing had already been done). I think that if I like the med onc at Fox Chase this week I may see about having a gyn onc there for followup instead of going back to this guy. That way once I am done with radiation I can be in one place. If I don't like the Fox Chase guy then I'll look at someone at another hospital (there is usually only one gyn onc at each hospital, sometimes two). Although finding new drs. is a pain, this seems like a good time to make a change.
So, after the appt. I went to radiation and they took me right away and I was out of there quickly. So the first week is done and only 5 weeks and one day to go :-)
Sunday, February 04, 2007
Subscribe to:
Post Comments (Atom)

3 comments:
Such a lot of ups and downs! Sorry your doctor is patronizing and that there is confusion in the records, but I'm glad you feel good. Hope you will keep feeling good! I'm thinking about you.
Tracy
How frustrating! Looking for another doc sounds like a good idea -- esp. at the same hospital.
Here's hoping you keep feeling good, er, awful :)
not all oncologists are jerks, but he sure sounds like some i know. this should be a non-patronizing experience. i hope fox chase works out.
thinking about you michele. much love.
Post a Comment